The Significant Burden of Migraine Disease National Headache Foundation Survey Shows Majority of People with Migraine are Unable to Control Disease and Dissatisfied with Current Preventive Treatment Options
The National Headache Foundation announced findings from a new survey, Preventing Migraine Attacks: A Current Perspective, which characterizes the experiences of people living with migraine and highlights the physical and emotional barriers to preventive treatment. Recently, Jill Dehlin, Chairperson for the National Headache Foundation (NHF) Patient Leadership Council – and someone who suffers from migraines – teamed with YourUpdateTV on a nationwide satellite media tour to discuss this debilitating disease.
A video accompanying this announcement is available at: https://youtu.be/xavJfPIoufU
The survey found half (50%) of people with migraine are extremely dissatisfied with their current ability to control their disease and report a range of emotions as a result, including frustration (39%), exhaustion (29%), stress (19%) and anxiety (15%). Despite the variety of options currently available to treat and prevent migraines, most people with migraine still aren’t able to completely control their disease and the negative effects and feelings that come with it. In fact, most responders (84%) currently taking a preventive treatment wish there was a better treatment option.
According to Jill Dehlin, “migraine is the second most debilitating disease worldwide and it impacts all facets of a person’s life, causing significant emotional and physical distress. So many people with migraine live in fear every day because they don’t know when an attack will hit…In this survey, many people reported feeling they are chasing an unreachable goal to get their migraine disease under control, highlighting the need for new preventive treatment options, as well as resources to educate and empower them to take control of their disease.”
The survey also explored how migraine disproportionately affects women and people of color to better understand their unique experiences and address challenges. For nearly half of women with migraine disease (48%), hormonal changes related to menstruation, menopause or childbirth triggered worsening of their migraine disease.
Black and Hispanic people with migraine reported being more likely to feel worry, fear, and anxiety at the thought of taking a preventive treatment. But when asked about treating their disease overall, 77% of Black and 73% of Hispanic responders say they wish they had sought care sooner.
For more information, visit: headaches.org
About The National Headache Foundation:
Founded in 1970, the National Headache Foundation is the oldest and largest foundation for individuals living with migraine disease and headache disorders. The NHF is the premier educational and informational resource for those in the headache community, health care professionals, and the public. The four pillars of the NHF are education, awareness, advocacy, and research. NHF works to inform policymakers, at the national and state levels, and the general public of the need to help patients get access to safe and appropriate care. Through its WorkMigraine program, the NHF reaches out to employers throughout the US to provide education for their staff and support in their efforts to minimize the cost and impact of chronic headaches. The Foundation works to educate and encourage the 40 million Americans with migraine and chronic headaches to become self-advocates with their healthcare practitioners, insurers, employers, and families.
YourUpdateTV is a social media video portal for organizations to share their content. It includes separate channels for Health and Wellness, Lifestyle, Media and Entertainment, Money and Finance, Social Responsibility, Sports and Technology.